Guides: Aged Care: Palliative Care

Aged Care - Palliative Care Resources

PALLIATIVE CARE

Voluntary euthanasia and assisted dying (2020) The topic of voluntary euthanasia and assisted dying has a long history of impassioned political and community debate in Australia, often appearing to raise more questions than answers. Recently, however, Victoria and Western Australia have passed voluntary assisted dying legislation which grants eligible people with a terminally ill condition, who are experiencing intolerable suffering, legal access to assisted dying services

End of Life: What Should We Do for Those Who are Dying? (2016) The purpose of this guide is to assist with talking productively about a difficult subject.

PALLIATIVE CARE

CareSearch palliative videos (2020)
Living with Dying (2019) Multiple personal stories on different aspects of dying.
Being Mortal (2015) Dateline: how doctors care for terminally ill patients and the relationships between doctors and patients nearing the end of life. D.
A Good Death (2010) It's a telling statistic that seven out of ten Australians die what might be called an "expected death". In many cases doctors can tell patients roughly how long they have to live. In reality, only a few take advantage of those warnings. Instead they prefer to believe that somehow modern medicine will save them. Now a small group of doctors and nurses are warning that our obsession with curing illness is leaving patients poorly cared for and unprepared for death.

PALLIATIVE CARE

Advance Care Planning in WA - Resources (2018) Includes information on: A Guide to Enduring Power of Guardianship in WA Your choices to make an Advance Health Directive, appoint an Enduring Guardian
Advance Health Directives [2020] WA Dept of Health
Australian Centre for Grief and Bereavement (2020)
Caresearch: Palliative Care Knowledge Network [2020]
Facts about morphine and other opioid medicines in palliative care [2020]
Families and Patients - Resources and websites [2020]
National Palliative Care Standards 2018 The National Palliative Care Standards (the Standards) clearly articulate and promote a vision for compassionate and appropriate specialist palliative care. The Standards recognise the importance of care that is person-centred and age-appropriate. In particular they point to the requirement for specific attention to the needs of people who may be especially vulnerable or at risk. This may include, but is not limited to, Aboriginal and Torres Strait Islanders; asylum seekers; people who have experienced torture and trauma; people who are experiencing homelessness; people living with mental illness, intellectual disabilities or dementia; paediatric populations; people with unique clinical needs; people who are lesbian, gay, bisexual, of transgender experience and people with intersex characteristics (LGBTI), people from culturally and linguistically diverse (CALD) communities, or those experiencing other forms of social or economic disadvantage.
Palliative Care - Allied Health Hub [2020]
Palliative Care Australia - Directory of Services [2020] The National Palliative Care Service Directory provides information about specialist palliative care service providers, state or territory palliative care organisations and community support agencies.
Palliative Care Curriculum for Undergraduates (PCC4U) (2020) PCC4U promotes the inclusion of palliative care education as an integral part of all medical, nursing, and allied health undergraduate and entry to practice training, and ongoing professional development.
Providing culturally appropriate palliative care to Aboriginal and Torres Strait Islander Peoples: Resource Kit (2020)
Trends in Palliative Care in Australian Hospitals (2018)
Understanding Grief [2020]
Palliative care and end of life care for indigenous people When providing person-centred care to Aboriginal and Torres Strait Islander people, it is important to ask the person who they would like involved in discussions about their health care as they may have decision makers or spokespersons who should be involved in all discussions and decisions regarding that person’s care. If this is the case, it should be clearly document in the person’s records
PalliAged palliAGED is the palliative care evidence and practice information resource for the Australian aged care sector. Providing support for health and care practitioners as well as resource developers, the website also provides trustworthy information for older Australians, their families and friends.
WA Cancer and Palliative Care Network (2020) The WA Cancer and Palliative Care Network (WACPCN) is a group of individuals and organisations committed to improving the patient experience for people with cancer or people accessing palliative care services. The Network provides a range of services to patients, the community and health professionals.

PALLIATIVE CARE

Patient and Person: Interpersonal skills in nursing. 7th Edition (2021) Online scenario-based videos to demonstrate the use of specific skills. Includes empathy, dealing with challenging behaviours, advocating for a patient and admitting a patient. Learn to build trusting relationships and support patients in their health journey. Narratives and stories to explain practical application of theoretical concepts. Forty-two learning activities to enable students to understand the content and practise skills in a focused manner. Person-centred approach throughout. Elsevier Adaptive Quizzing for Patient and Person
Oxford Textbook of Palliative Nursing (2019) Covers from the time of initial diagnosis of a serious illness to the end of a patient's life and beyond. Chapters on advance care planning, organ donation, self-care, global palliative care, and the ethos of palliative nursing. Each chapter is rich with tables and figures, case examples for improved learning, and a strong evidence-based practice to support the highest quality of care. The content is relevant for palliative care programs, as well as generalist knowledge for schools of nursing, oncology, critical care, and pediatric.
A Good Life to the End (2019) A professor of intensive care asks why so many elderly people linger in pain and confusion in ICU when all they want is to die at home in peace and with their loved ones. A crucial and timely rallying cry against unnecessary suffering and for humanity and gentle acceptance at the end of our lives.
Palliative and End of Life Care in Nursing (2017) Covers complex issues, including handling bereavement, cultural and ethical issues, delivering care in a wide variety of settings, symptom management, and also ensuring your own emotional resilience. This book is specifically designed to equip nursing students and non-specialists with the essential knowledge in relation to the care and management of people nearing the end of life.
The Australian carer : a training manual for aged care workers (2017) Chapter 18 Providing palliative care
Hospice and Palliative Care (2017) guide to the hospice and palliative care movement both within the United States and around the world. Chapters provide mental-health and medical professionals with a comprehensive overview of the hospice practice as well as discussions of challenges and the future direction of the hospice movement. Updates to the new edition include advances in spiritual assessment and care, treatment of prolonged and complicated grief, provision of interdisciplinary palliative care in limited-resource settings, significant discussion of assisted suicide, primary healthcare including oncology, and more. Staff and volunteers new to the field along with experienced care providers and those using hospice and palliative care services will find this essential reading.